Autonomy & Blindness Part 1: External Daily Life

Author: Cryptic Anomaly

A white cane usually becomes an invitation that was never given to others in the first place. Its presence tells the external world that someone is blind yet people often interpret it as permission to touch, redirect, supervise or make a decision.  For example, a stranger may grab the person’s arm and begin guiding them across a street that they did not intend to cross. A receptionist may speak to the sighted companion instead of addressing the blind adult standing directly in front of them. A family member may decide that an outing is too dangerous before asking how the person intends to manage it. These actions are often presented as helpful yet help and autonomy are not always compatible. Permitted assistance from another person supports autonomy when it gives the blind person greater control over their life. It becomes control when another person uses blindness as a reason to take over the blind person’s decision-making.

Autonomy is also frequently confused with complete independence. Under this narrow understanding, needing transportation, directions, visual descriptions, accessible technology or a sighted guide supposedly makes a blind person less autonomous. However, autonomy is not measured by how many tasks someone can complete without another person. It concerns who determines the purpose, direction and acceptable conditions of an action. For example, a person may rely on someone else to drive them to an appointment while still deciding which appointment to attend, what information to disclose and whether the provider’s recommendations are suitable. In contrast, someone may physically complete a task alone while living under restrictions created by other people’s fears. Independence describes how something is done whereas autonomy identifies who remains in control of the life being lived.

Additionally, external daily life makes this distinction especially visible. For example, blind people usually navigate through streets, shops, medical offices, restaurants, public transportation and unfamiliar buildings that are designed mainly around visual information. Signs may be unreadable, service counters may lack accessible technology and transit changes may appear only on screens. As a result, these barriers can create a practical need for assistance although the resulting dependence is often attributed entirely to blindness. Somehow, the inaccessible environment conveniently disappears from the explanation. Another example is that a blind person who cannot independently use an unlabelled touchscreen may be viewed as incapable of completing the transaction, while the machine that excludes them is treated as neutral. Ontario’s accessibility legislation recognises that barriers can exist in goods, services, facilities, employment, accommodation and physical environments. It also places responsibility on organisations to identify, remove and prevent those barriers (Accessibility for Ontarians with Disabilities Act, 2005, 2005, s. 1). Therefore, this means that dependence created by poor design should not be mistaken for personal incapacity.

Furthermore, unrequested physical guidance is one of the clearest examples of how supposed assistance can remove a person’s individual authority. Grabbing someone’s body, clothing, cane or guide dog without permission or warning can disorient them and interfere with the mobility techniques they are already using. A white cane is not a handle attached to a human for the public’s convenience. It functions as an extension of the person’s spatial awareness which means abruptly moving it can remove information at the exact moment that information is needed. Respectful assistance begins with communication. A person can identify themselves, explain what is happening and ask whether help is wanted. A refusal does not require debate, correction or a second attempt. Consent also remains necessary even when the person offering assistance believes they are preventing danger. Safety is not strengthened by treating a blind person’s body or mobility aid as the public’s property.

The language of safety creates another problem. Concern from others especially loved ones may be sincere but sincerity does not prevent it from becoming controlling. There is a clear difference between explaining that construction has blocked the usual pavement and deciding that the blind person should remain at home. The first provides information that supports a decision. The second removes the decision altogether. Blind adults, just like sighted adults, are entitled to reasonable risk including the possibility of becoming lost, selecting an unsuitable route, trusting the wrong person or making a mistake. Sighted people are not expected to demonstrate flawless judgement before they are permitted to move freely.  Regardless, when blindness causes every error to be interpreted as proof of general incompetence, autonomy then becomes something that must be repeatedly earned.

Canadian law provides an important foundation for challenging this treatment, even though legal protection does not prevent it from happening. Section 15 of the Canadian Charter of Rights and Freedoms guarantees equality before and under the law along with equal protection and equal benefit of the law without discrimination based on mental or physical disability (Constitution Act, 1982, s. 15). Additionally, the Accessible Canada 

Act states that people with disabilities must be treated with dignity, must have equal opportunities to create the lives they are able and wish to have and must have barrier-free access to full participation in society (Accessible Canada Act, 2019, s. 6). These principles do not describe disabled people as passive recipients of supervision. Instead, they recognise disabled people as individuals who are entitled to direct their own lives.

Legal accommodation also means more than allowing a blind person to enter a space. The Ontario Human Rights Commission explains that organisations covered by the Human Rights Code have a duty to accommodate disability-related needs to the point of undue hardship. Accommodation is intended to provide equal opportunity, access and benefit (Ontario Human Rights Commission, 2016). Despite this, a service may technically be accessible while still being personally degrading. For example, a medical office might provide an accessible form but direct private questions towards the person accompanying the patient. A restaurant employee may read the menu aloud while assuming the blind customer cannot choose or pay for their own meal. Similarly, a support person may be allowed into a meeting, only to be treated as the blind person’s interpreter, guardian or substitute voice. Due to this, physical access without respect for authority, privacy and consent remains an incomplete form of inclusion.

All-in-all, autonomy in one’s external daily life does not require rejecting assistance to prove their competence. However, it requires retaining control over what assistance is accepted, who provides it and where it is meant to lead. A white cane, guide dog, screen reader, transportation service, sighted guide or trusted companion can expand freedom when it supports the blind person’s decisions. These same resources can also become restrictive when access is made conditional upon obedience, compliance or gratitude. Blindness changes how someone gathers certain information and navigates particular environments. It does not transfer ownership of their body, judgement or future to whoever happens to see more. The most respectful question is not whether a blind person can do everything alone. It is whether the world has provided enough access, information and space for them to decide for themselves.

References

Accessible Canada Act, S.C. 2019, c. 10. https://laws-lois.justice.gc.ca/eng/acts/A-0.6/

Accessibility for Ontarians with Disabilities Act, 2005, S.O. 2005, c. 11. https://www.ontario.ca/laws/statute/05a11

Constitution Act, 1982, being Schedule B to the Canada Act 1982 (UK), 1982, c. 11. https://laws-lois.justice.gc.ca/eng/const/

Ontario Human Rights Commission. (2016). Policy on ableism and discrimination based on disability. https://www.ohrc.on.ca/en/policy-ableism-and-discrimination-based-disability

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